Empowered by Rare
Helping the Rare Disease community Rise, Grow, & Flourish.
About Empowered by Rare
Empowered by Rare is a podcast for patients, parents, and caregivers who want to feel supported, uplifted, and a little less alone on this rare disease journey.
Each episode is here to help you feel not just empowered, but also more connected. You’ll hear about other rare diseases, learn something new, or simply find comfort in knowing you’re not in this by yourself.
Research and studies are important, but this space is about you. Your story matters. Your voice matters. And I’m here to cheer you on every step of the way.
About Empowered by Rare
Empowered by Rare is a podcast for patients, parents, and caregivers who want to feel supported, uplifted, and a little less alone on this rare disease journey.
Each episode is here to help you feel not just empowered, but also more connected. You’ll hear about other rare diseases, learn something new, or simply find comfort in knowing you’re not in this by yourself.
Research and studies are important, but this space is about you. Your story matters. Your voice matters. And I’m here to cheer you on every step of the way.
Latest Episode
Collaborating with Clients
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Season 2, Episode 4 | 38min
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Submit Your Written Story
At Empowered by Rare, we celebrate your story. They’re as important to us as you are. . Submit your story today to be featured on our website and/or our podcast.
Submit via SpeakPipe
Do you have a story to tell, but don’t want to write it all down? That’s why we have SpeakPipe! Submit your story today to be featured on the podcast and our website.
Rare Stories
Would you like to read stories of patients, caregivers, or others affected by a rare disease? View and/or listen to stories and recently approved submissions today.
Be On Our Podcast
Want to talk to Nancy about your life with a rare disease? Or have a topic that may be interesting to our audience? Submit your application to be on the Empowered by Rare podcast today.