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Your Story Matters
Living with a rare disease can feel isolating, but your voice deserves to be heard. Empowered by Rare is where stories of strength, resilience, and hope come alive.
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Our Story
Empowered by Rare began with a dream — that no one living with a rare disease should ever feel invisible or alone.
When I was younger, I often felt like the only one in the world living with congenital panhypopituitarism. It was isolating. But as I grew, I realized something powerful: there are thousands of us, scattered across the globe, carrying rare stories that deserve to be told. And when we share those stories, something shifts. We see ourselves reflected. We feel less alone. We remember that we are part of something bigger.
That’s what this community is about. It’s about us — patients, caregivers, families, and friends — choosing to rise above fear and isolation and instead step into courage, hope, and connection. Through stories, conversations, and the voices of people who understand, Empowered by Rare is a place where we honor both the struggles and the triumphs that come with living differently.
This is more than my mission. It’s our movement. Together, we are rewriting the narrative around rare diseases. Together, we are proving that while our diagnoses may be rare, our strength, love, and resilience are anything but.
Because no matter what challenges we face, we are all born to flourish.
Your Host
Meet Nancy Hill
I was born with a rare disease called panhypopituitarism, and for as long as I can remember, my life has been intertwined with medicine, appointments, and challenges that most people never have to face. Yet in all of those struggles, I’ve discovered something beautiful: resilience. I’ve learned that even when life looks different what we imagined, there is always space to grow, to love, and to flourish.
Writing my memoir, Born to Flourish, was my way of opening my heart and sharing the truth of my journey — not just the hard parts, but also the moments of hope, humor, and unexpected joy that carried me forward. My deepest wish is that my story helps others who live with rare diseases (or any kind of hardship) feel less alone and more empowered to embrace their own journey.
But my life isn’t only about the rare disease world. I’m also a dreamer, a creator, a writer who loves bringing ideas to life. I’m passionate about building spaces where people feel seen and heard, whether through storytelling, design, or meaningful conversations.
At home, I’m happiest when I’m with my cat Minnie, sharing laughs with my partner, or enjoying the simple moments — a cup of tea, a walk in the fresh air, the quiet joy of being present.
What I know for sure is this: flourishing isn’t about living a perfect life. It’s about finding beauty in the imperfect, courage in the unknown, and joy in the everyday. And that’s what I hope to share with you here.
My memoir, Born to Flourish, tells the story of how I’ve navigated health challenges, loss, self-discovery, and growth — and how I’ve learned to see myself as more than just my diagnosis. Writing it was both one of the hardest and most healing things I’ve ever done, and my hope is that it gives others living with rare diseases (or any kind of adversity) a sense of belonging, hope, and possibility.
Beyond writing, I’m passionate about creating spaces where people feel seen, heard, and empowered. That’s why I’m launching the Empowered by Rare podcast and community — a place for rare disease patients and families to share their stories, connect with one another, and remember that while our conditions may shape our journeys, they don’t have to limit what’s possible.
When I’m not writing or podcasting, you’ll usually find me with my cat Minnie, dreaming up my next creative project, or enjoying simple everyday moments with my partner and family. My life hasn’t always followed a traditional path, but it’s mine — and I’ve come to believe that flourishing isn’t about perfection. It’s about embracing who we are, exactly as we are, and growing anyway.
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